Because this is too cute not to post

SAM_0252Yep, her hairstyle lasted 3 days. So I had to change it up tonight. She’s going swimming tomorrow, and I didn’t have the three hours of hair time I needed so I threw her hair into some flat twists and called it a night.

What have I gotten myself into!?

Hairable Experience

I’ve been blessed with several black female friends who, when they found out I was adopting a black girl, issued me  a challenge: “You have to take care of her hair.”

Of course, I thought. Wouldn’t all mothers take care of their little girl’s hair?

Clearly I was naive as to the depth and complexity of the hairable world of hair of little black girls.

Long before I met Addie, I was introduced to the blog-bible of Caucasian mothers who have adopted black girls, “Chocolate Hair, Vanilla Care.” I began to study at the feet of the author, who  taught lessons of cowashing, shingling, plaiting, and carrier oils. It would take months to read and understand her years of experience and wisdom. I’m not quite there yet.

Out of all the hairstyles I studied, I decided that the one I liked best was just a natural Afro.  I so hoped that Addie’s hair would be ringlets that would be naturally suited for a cute curly Afro!

When I first met Addie, her head had just been shaved days before. Apparently, lice was common in the orphanage, so the children’s hair was regularly shaved. I would have much rather dealt with lice than a year of, “Why is your little boy wearing all pink?”  I was so sad for Addie’s shaved head, but as her hair grew, I realized that it was growing into perfect tiny spiral curls. I was elated that my little girl would have beautiful perfectly ringlet-ed natural hair.

Fast forward 10 months.

My bathroom closet looks like a drug store clearance rack — a hodgepodge of products — conditioners, detanglers, moisturizers, curl activators, frizz tamers and on and on. We’ve experimented with a dozen different products in different combinations, and all with the same results: Addie’s hair looks adorable when she walks out the door, and like a rat’s nest when she walks back in.

I realized that I needed to call in backup.

So I met recently with two of my black female friends to discuss the trials of the hairable world of little black girls.

They assured me I would do fine. Yeah right.

I explained that after trying to do “natural hair,” I am waving a flag of defeat and trying to do something different with Addie’s hair. “But my problem is that I can’t find anyone who does black little girls’ hair. I’ve Googled numerous terms and can’t come up with anyone.”

Both of my friends laughed. “Oh, you don’t Google these folks. At least no one good. You have to have to find them by word-of-mouth.”

So I asked them for a reference. One decided to give me the name of someone she had recently used and that person’s cell phone number.  ”Candice. 555-1212.*”

“There’s only a first name here,” I remarked. “Can I have her last name?”

“Oh, there are no last names in black women’s hair. But tell her that Shari Jarvis* with the Senegal twists gave you the number and tell her your story.”

“Gotcha,” I replied. “Where is her salon located?”

“No, no, no,” she chided. “You ask her to do it ‘on the side,’ and she’ll come to your house to do Addie’s hair. It’s actually even cheaper that way.”

She was speaking my language. I proceeded with my line of questioning. “So if I like a black woman’s hair, can I ask her what products she uses in her hair?”

“Nope, that’s a secret.”

“So, I can’t ask who does someone’s hair, or what products they use, but recommendations are all word-of-mouth?

“Exactly.”

“What if I were to do her hair myself? I’ve seen this great website that shows me how to do Bantu knots, cornrows, and extensions.”

They assured me that extensions were beyond my scope, but I could probably attempt something more simple. By this time, I was starting to get nervous about having anything to do with Addie’s hair. They reminded me that she had to sleep in a satin sleep cap with a satin pillowcase. Be careful about her rubbing her head against the car seat, and make sure she doesn’t play with her hair.

They also reminded me that they themselves were thankful that they had boys and never had to deal with the hairable experiences of dealing with the complexity of little girl hair. Very reassuring.

So Sunday night, I attempted to put Bantu knots into Addie’s hair, but I soon realized that her hair wasn’t long enough, so I quickly switched to comb coils. The rest of the night wasn’t so quick. THREE  HOURS LATER, I finished my first hairstyle on Addie, with no small amount of whining. Addie didn’t enjoy it much either. (Ain’t nobody got time for ‘dat!)

How long will it last? I’m told that many styles will last for 2-3 weeks, which is 2-3 days in Addie time.

When I picked up Addie from day camp today, the black woman sitting at the entrance table complimented me on Addie’s hair.

“I really had no idea what I was doing, so it means a lot to me that you say that,” I replied.

“Are you kidding me? I have no idea how to do that!” she replied.

“Oh, it wasn’t too hard. Maybe I’ll be able to put you in touch with some people . . . once I know you a little better.”

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* Identifying information has been changed to protect the innocent.

Surprising Parenting Skills

When we became parents, we didn’t start with infants, we started with “ready-made” kids. Well, ready-made kids who spoke another language and came from a completely different culture. There was no time to learn their personalities before embarking on disciplinary methods. We often didn’t know if their behavior was disobedience or ignorance. We didn’t know how much they could be trusted or if they were plotting evil against us.

We were thrown into the deep end of parenting awfully quickly. We were four strangers trying to become a family, one way or another. So along the road to figuring out this wild-style parenting, I discovered that Ken and I had some really unique gifts that we never realized that we had.

Our surprising parenting skills:

The ability to make up a rule for no apparent reason. Tonight I literally told the kids, “You cannot have a cookie until you finish your popcorn.” Why? I don’t even know. But somehow it seemed like the right thing to do. And in a strange but not entirely unexpected twist, only one child earned a cookie.

To have a straight face when our kids are hilariously naughty. Palmer’s biggest crime at school has been giggling. He’s a goofy boy, and if he gets tickled about something, he has a hard time keeping a straight face. Still, we understand that inappropriate laughter can be very disruptive, so when his teacher sent home notes that he was giggling in class, we had to take it seriously. But to punish a child for laughing too much is a skill that has to be developed, even if the child’s story is hilarious. The parental laughter is saved until after 8:00 p.m. when the kids are asleep.

To come up with double-cross punishments. Many internationally adopted kids come to America believing that they will have whatever they want whenever they want, and have difficulty with limits. Palmer was especially that way. He would cry and scream if he could only watch one cartoon instead of two, or throw temper tantrum complete with kicking and yelling if we told him to put a toy away so we could leave the house or eat dinner. So we told him that if cartoons and toys made him sad, he shouldn’t have them. After all, we want him to be happy! If cartoons make him sad, he just shouldn’t watch them for the next week! If a toy made him cry, we should either break it or give it away to someone else who will be happy to have it!  A particular favorite of mine was when the kids used to refuse to ask to get down from the table. So I’d let them just at the table until they asked to get down. For over an hour. Boy, they really showed me! ;-) I took pictures, which I will show at some important late-high-school event. Or their wedding.

To recognize the level of misbehavior our kids are engaged in by the tone of their laughter. Addie has a particular high-pitched giggle, which automatically earns an, ”Addie, are you being good or are you being bad?” question from across the house. 97% of the time there is complete silence from Addie. Then I remind her that she needs to be good. To which she responds with a sheepish, “Okay.”

To turn three pages at a time in a book that is way too long to be read just before bed. I know my children plot to find the longest books they can as bedtime stories. Two can play at this game. As long as Addie is sitting on my right, I can pull it off turning multiple pages at one time. Palmer is too observant. It does take a special diversion to get them to look at something on the page on the left. I have become a master of such techniques, because let’s be real, mommy really needs the little people to go to sleep so daddy and I can catch up on laughing at all the hilariously naughty things they did today. And eat chocolate.

To know which child has their eyes open during prayer without opening mine. Ahem. It must be the Holy Spirit.

To know who really did start it. Addie. She has a special gift.

To say things that my parents said and I swore I never would. “Because I said so.” “If I have to stop this car . . .” “When I was your age . . .” It’s almost like relearning to ride a bike, only you weren’t the one riding it 30 years ago. Some phrases just must be genetic.

Fortunately, our children have survived our initiation into parenthood and are doing well. Most of the time, I have no real clue what I’m doing, but count on the fact that God entrusted them into our care, and so He’s sort of obligated to give us the wisdom and resources to give them what they need.

Well, Look at You

You’re still here!

Let’s see if I can sum up the last 2 months . . .

We have now been home from the Congo for 10 months. Our kids are both now speaking in sentences, with Palmer completely comprehensible. Addie speaks with enthusiasm, although we’re never quite sure about what.

Addie finished educational testing. She now qualifies for speech and occupational therapy and will get an IEP. They say that they are still a little baffled by her because she has mastered more advanced skills for which she doesn’t have the basics. (She can hop on one leg for over a minute, but she cannot stand on one leg. This sort of thing happens academically too.) She has completely caught up with her gross motor skills. If you had seen her try to run or climb stairs in the first month she was home, you realize how miraculous this is. We hope to make similar progress in other areas, but it’s beginning to look like Addie is always going to need some extra help.

Palmer finished out the school year with a top award from the school: The Triple A Achiever for the overall school — academics, attitude, and attendance. He won a huge giant green frog stuffed animal. He still is behind his classmates, but his teacher recognized that his effort to try to catch up was remarkable. The first day after school ended, he begged to continue to work on schoolwork. So we’re working through some online learning programs with both of them, and have enrolled them both in a summer academic enrichment camp. Today was their first day, and they loved it.

Part of me wrestles with how much the kids have to do and work at. Not only the last year of school, when they both skipped a grade, but the 6 and 8 years prior to that when no one introduced them to numbers, or read them bedtime stories, or made sure their toys weren’t tainted with lead. They didn’t get the benefit of learning the language they are being educated in until they got to America. There are a million snuggly, enriched, carefully crafted moments that our kids missed out on. They have to make up for lost time. They have told us so many stories that make me shudder — and they don’t even know that all kids didn’t grow up the way they did. So sometimes they struggle with sitting still, or recognizing social cues, or trusting us as parents. I’m thankful for all the people in their lives who give them the extra grace that they missed out on the first 6 and 8 years of their lives.

I’ve now received my third injection of Xolair. I still have the same yucky cough, but my fever is better. My cough almost went away in the last few weeks, and then I had a bad weekend and it’s back. They say I should start noticing a difference in how I feel after month 3. I’m still waiting for the $10,000 worth of treatment to kick in. Most of the time, I feel okay. Some of the time I feel plain awful, and I still get random infections. Case in point: on Addie’s 7th birthday, I woke up with a raging case of bacterial conjunctivitis. I’ve never seen anything like it. My eye was swollen shut and goopy, fever, nausea, vomiting. But a little girl only turns 7 once. (Well, actually that might not be the case for Addie, ahem.) Anyway, so I pretended to be well for an hour that evening  because I didn’t have the energy to actually make any food, and we went to a dark Rainforest Café Restaurant and ordered the VOLCANO! for dessert. On the way back to the car, Addie asked me why my eye was gross. Because I like to do things really special for your birthday, Addie, like get a facially mutilating infection and appear in public. Isn’t that what every 7 year old girl wants for her birthday?

Addie and Palmer were presented for dedication in church at the end of April. While we’ve always recognized them as God’s children, we had to wait for a time for our kids to trust us enough to allow us to present them in front of the church. Given some of the things they have experienced in the past, this was pretty scary for them, but they did great! My parents flew out from Oregon, and my Aunt Nettie came down from Kentucky, making it all the more special.

Both kids played Upward soccer this spring and both did very well. Addie was quite good, in spite of the fact that she really only learned to run less than a year ago. Palmer excels at soccer, and now that he actually comprehends the rules of the game, he has been able to combine his skills with strategy and is a force to be reckoned with on the field.

Somewhere in the midst of all of this academic testing, award-winning, injection-receiving, relatives- having-in, soccer-playing, and infection-getting, I was promoted to the Director of our PA Program. I still have mixed emotions about this. On the one hand, what an honor! On the other hand, I’m drowning in work. We’ve had three and a half administrative faculty leave this year due to illness, retirement, family issues, etc. and I have a enormous task of taking on much of their jobs, delegating when I can, but most of it just has to be done by me. In the past fourish weeks, I have filmed a baccalaureate video, redesigned and edited the student handbook, coordinating a hooding ceremony, said good-bye to two employees, hired a new faculty member, helped coordinate our program’s first ever-indoor graduation because the outdoor one got rained out, took 11 students to an awesome conference in Atlanta about serving the poor through healthcare and debriefed them, written a magazine article, reworked our ACLS/PALS courses with a new team of instructors from out-of-state, conducted a two day orientation for new PA students who just started classes last week and managed the process of getting them started in a new Program, took part in alumni board meeting, negotiated a new position for our Program and the clinic for which I hope to be hiring soon, helped work on a neighborhood restoration project, staff a 12 week class exclusively with guest lecturers and an overseeing adjunct, continued to see patients in the clinic, negotiated several contracts for student software purchases, finished putting together and submitting a 116 page accreditation document with 28 supporting documents, and many other things that fill the spaces in between. And we are just getting started on the busiest time of year. Things are hard now, but they are going to be oh so good when we can catch up, adjust to the changes, and move forward with confidence that this is exactly what God had in mind. I know it seems a little crazy — to me too– but God has spoken to me about not wasting a vision, and how many examples scripture holds of God calling the weak and unsure so that only He would be glorified. I’m excited to see where God is leading. And slightly overwhelmed.

Ken just finished up his second year of Upward Sports. Last year, Ken worked 5 nights a week. This year, he worked 4. That’s in addition to working Saturdays and Sundays. Trying to balance that much work on the part of both of us has been exhausting. Ken and I almost never have a day off together, and barely have any evenings together. Those projects like: cleaning the basement, taking the kids to a museum as a family, sorting the junk mail, visiting friends who live out of town, or spending a day lounging in pajamas never happen. Add to the equation two new kids with some very unique needs, my illness and work challenges, and we are just . . . broken. It’s hard enough to do everything if both of us had “normal” jobs, but with nearly opposite schedules we needed a change. As God-honoring as both our jobs are, I don’t believe that God is honored when our fragile family is being stretched so thin. Yes, our kids are resilient, but haven’t they also had to deal with more then their fair share already? So Ken asked to take a salary cut and go part-time. And fortunately, the church said yes. It was a very painful — and costly — decision. Honestly, had it been me (the wife) going part-time, I don’t think it would have been as controversial, but I have benefits and salary that could absorb Ken going part-time. The opposite wasn’t true. We needed a new plan to make our family function more healthfully. So we’re tightening our belts and giving Ken working part-time a try.

So that’s the latest from our family, and a bit of an explanation of why we’ve been silent. I haven’t had a Saturday off since April, and my evenings have been packed as well, and I’m just starting a new semester. I hope that one day, things will slow down for us, but for now, we are continuing to trust in God’s guidance for our lives personally, and as a family.

Here are some photo highlights from the last 2 months . . .

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Stuck in the Middle

When I last left off, I was diagnosed with two immune problems: too many allergy antibodies, and not enough infection-fighting antibodies. We decided to address the allergy antibodies first and hold off on treating the infection-fighting antibodies. It was made clear by my nurse practitioner that my lack of infection-fighting antibodies is more correlated with stress than most people. The more stress, the fewer antibodies I produce. It is very important for my immune system to reduce stress as much as possible, and I would possibly be able to avoid having antibody infusions or injections.

Stress reduction in order to live. No problem. Especially with two children adopted from Africa in the last year, and a husband who works four nights a week and all day Saturdays and Sundays, in addition to me working full-time. Still, it was manageable.

Then my boss resigned. Not the one that was diagnosed with the brain tumor, the interim boss after that. He’s giving plenty of notice, and is definitely being helpful, but it’s become clear that I need to step up my responsibility at work in a very short period of time. There is no one else in place at this point that can do it. But I’m still pretty sick.

Stress reduction in order to live. Now it’s a problem.

So I went back to my allergist/immunologist physician and did nothing short of beg for IgG antibody replacement. It was really rather pitiful, actually. But in my perspective, I’m somewhat begging for my life and my job, which are both pretty important to me. I cannot stop my children from bringing home viruses and bacteria from school. I cannot quit my job. The only variable is giving a boost to my immune system.

He said no.

Now, in his defense, he has never seen me sick because I only see the NP when I’m sick because he’s booked months in advance. And in his mind, because I was about to get anti-IgE Xolair, he didn’t want to do two immune therapies at once.

He told me, “You just need to work on reducing stress in your life.”

I kind of wanted to punch him in the face. With the love of the Lord. And maybe call down some fire and brimstone. And tear up the $600 bill he’s going to send me for that sound advice. And mail him the pieces.

Too far?

This week, I finally got my first injection of Xolair, which will reduce my ability to have an allergic reaction, although it takes several months to really see the benefits. It’s a two hour process to get the injection and then you have to see a medical provider afterwards, all the while having lots of vitals taken, peak flows measured, and a nurse giving you the stinky fish eye across the room because Xolair has a surprising side effect of causing anaphylaxis. I felt a little yucky and had some blood pressure issues, but I lived.

So three hours after my Xolair injection, I met back up with the NP who has been seeing me. I blabbered on about all I’ve been through, and the changes in my responsibilities that have occurred since we last talked. She believes I should start IgG and wants to start the approval process. She has seen me really really sick. I have scared her on numerous occasions. After all, no one is more stubborn about asking for medical help than a medical provider themselves. She is going to talk to her supervising physician (my doctor) and see if she can get him to change his mind.

Meanwhile, I start my third month of running a fever. I start my seventh month of having a productive cough. I wash my hands even more obsessively than before. I avoid crowded places with coughing people and perfume.

And I wait, stuck in the middle between two medical providers and what they believe will make me well.

Fun with Flatulence

I blame the spelling list.

It all started about a month ago with the list of words Palmer brought home for the week, which included “art,” and “farm,” and “barn.”

Rather than just having Palmer write out the words, we’ve tried encouraging him to think through how to spell words. We find that he is very good at thinking through sounds and spelling them. He’s actually much better at spelling than reading. Considering he didn’t even know what a letter was 7 months ago, we are more than pleased.

Sometimes, we throw in similar words to his spelling words to see if he can use the same principles to spell new words.

With words like art and farm, what was the next natural word selection?

Fart!

Sure enough, he spelled it perfectly. We all had a good laugh about that. I am so proud that my son can spell fart.

Today, the issue of flatulence arose again (ahem, Addie), and we revisited the spelling. Sure enough, Palmer can still spell it.

Then I remembered someone telling me about a funny book about a flatulent dog, and I had to find it.

Tonight at bedtime, we introduced the kids to “Walter, the Farting Dog.” What could be more entertaining for a 6 and 8 year old? Palmer laughed so hard, I thought he was going to cry, choke, or pee. Maybe even all three at the same time. This is why I am thankful for my medical training.

We finished the night with some juicy zerberts to the cheek, and again, the kids were in stitches.

My friend, Angie, alerted me on Facebook that there is also a Walter the Farting Dog stuffed animal that makes real farting noises. Nothing says “Easter basket” like candy and a farting dog, don’t you think?

Who knew flatulence could be so fun?

Easter Fun

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Hunting Practice

The notice came on Friday: Palmer needs to bring 24 filled eggs to school for an Easter egg hunt this week.

I supposed that this would probably be the best time to introduce the kids to American Easter.

Of course, they already know about Jesus rising from the dead and the Biblical side of Easter, but it’s now time to cover the other side of Easter: the eggs, bunny, basket side of Easter.

I asked the kids if they celebrated Easter in the Congo — when Jesus rose from the dead. Addie said yes. Palmer said no. This is a typical answer to “when you were in the Congo” questions.

I could not send our kids into one of the most important kid-to-kid battles for candy and toys without sufficient preparation and practice. This is a definite early-bird-gets-the-worm skirmish. I had images in my brain of our children standing at an Easter egg hunt, baskets in hand, confused with other kids finding eggs, toys, candy before our kids having any idea what they are to do. This should not happen to our children. We have to make up for all the years of experience their competitors will have!

So today, we set up an Easter egg hunt for them in the back yard, with empty eggs. After all, finding out that Easter eggs contain candy and toys may simply be too much for them to handle at one time. Then we set out the rules:

1. There are 25 eggs in the back yard. There will be zero eggs in the back yard before snack time. Hint hint.

2. Use the bag to your advantage to keep your hands free to pick up more eggs.

3. No pushing, shoving, or stealing of the eggs of siblings.

4. Do not follow another sibling. You will find more eggs if you use your own eyes and hands.

5. The goal is to find the most eggs.

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The kids had a great time. One child was distinctly more strategic and successful. The other sibling may have occasionally forgotten why she went outside. The outside hunt was followed by two in the living room, one in their bedroom, and another one outside.

I then revealed that they were going to be hunting for eggs at school and at church with other children.

Minds. Blown.

They are so excited! It’s fun to introduce American traditions to kids who haven’t had the chance to experience them, and yet are old enough to understand and enjoy what’s going on. Just wait until they find out that there are treasures inside those eggs! I anticipate some serious squeals of joy.

The kids have been trained and are ready. They know the rules. They have strategies. And if at the next Easter egg hunt, you see the Jewett children doing pre-hunt stretches, you’ll know why.

 

Third World Kids in a First World Family

Adoption of older children is always challenging. Adopting older children from another culture results in some frankly bizarre situations. Lately, our kids came home with a very exciting story about how at school, they were told to put their heads down and put their hands over their heads. “It was a tomato drill!” they exclaimed.

Much of our children’s history is still a mystery to us. Stories are slowly coming, but the difference between truth and fiction is hard to discern, especially knowing their deep desire to protect their past. The clouded memories of childhood are fading quickly into a mixture of wishful thinking of how things should have been and denial of what really happened.

What were they like as infants? Where did that scar come from? How can they come with the same history and have such different capabilities, nutritional status, and memories? What happened to them before they landed at the doorstep of an orphanage in Kinshasa?

We will likely never really know.

As we’ve been getting to know our kids from a completely different culture, I’ve appreciated that there are so many wonderful things that their culture has instilled in them. There’s always a fear of taking a child out of another culture that they will lose some important sense of self, the values of their culture, etc. But at the same time, leaving children in orphanages in third world countries just for the sake of “maintaining their culture” is hardly the answer either. There must be a careful balance of maintaining the best parts of their culture with the nurturing only a family can provide.

Here are some of the things I appreciate and want to preserve about my children’s culture:

1. Their appreciation for “real” food. When given a choice between a french fry and fresh fruit, the kids will typically pick fresh fruit every time. They LOVE water and milk. They never leave the table without drinking every drop. Every grain of rice is cleaned off a plate. Meat– and especially fish–is a real treat.  They didn’t really like candy very much when they came to America — they much preferred meat or bread. We didn’t offer them candy often, but they would refuse it more often than not. This is in stark contrast to what happens today in their new American lives. Almost every day, they come home with candy or candy-like treats. Do I take candy from my children? Heavens, yes! We didn’t even participate in Halloween, and we didn’t give them candy for Christmas or Valentine’s day, but we still have a never-ended supply of candy in a jar on our counter that we’ve confiscated from them. We find bags of candy stashed away in their toy drawers, in their backpacks, and stuffed around their car seats. They actually do like candy now, and I feel like the Candy Police trying to preserve their appreciation for real foods.  It seems like Americans give candy to kids for every occasion, and especially as a reward for good behavior. We should not wonder why children are developing Type II diabetes. We started giving it to them when sugar replaced love and praise.

2. Their lack of dependence on technology. Our kids do not play video games. Out of a moment of desperation, Ken showed Palmer how to play Angry Birds shortly before Christmas, and it became immediately apparent that video games were not a good thing for our kids. The addictive and absorptive nature of technology was unhealthy and unnecessary.

While there are some very good learning apps, I’m sure, I teach the first generation to be raised on technology-dependent education, and I can see the pitfalls. There have been some very interesting studies about how technology-dependent learners can learn more, but they think less. They can memorize lots of bits of information, but truly struggle when trying to put it all together. They have never had a college lecture without Powerpoint, so they have a hard time teaching themselves capture significant information, draw diagrams, pull information out of textbooks. But this is how real-life critical-thinking occurs. It’s not linear and spoon-fed.

I want my kids to learn to read real books, have real conversations, play board games, make forts in the living room, ride bicycles, and play hide and seek. They have an amazing ability to entertain themselves without technology “stuff.” I like that their culture has given them imaginations and a strong desire for physical exercise every day. To introduce them to the “stuff” of the technological world seems contradictory to what we are trying to accomplish in establishing bonds as a family. They haven’t had technology before, so they do not have a sense of what they are missing. And I’m thankful for that. They will have plenty of time to gain computer skills. Wii controller skills are even further down on the list.

3. Their dependence on God to provide. This one probably scares me the most. Let’s be honest, in our culture, we don’t “need” God much. We know where our next 7 days worth of food are coming from. Even the homeless and jobless population in our city can get 3 free meals a day, 7 days a week. Contrast this to the culture where our kids come from where parents and children alternated days eating. That’s right. Not everyone could eat every day, so they switched off. Kids eat one day, parents eat the next. And not three meals a day. One meal every other day. This was NORMAL for the culture. Their homes were collections of refuse strapped together that would hopefully keep the rain out. Every drop of water was a gift. Clean water was a treasure. Running water, unimaginable. Shoes were worn until they disintegrated. They slept in the same clothes they played in. They shared a bed with 5 other children. They sang worship songs without a full band and coordinating Powerpoint with reflective backgrounds.

We bought our kids some $2.95 shoes at Children’s Place a couple of weeks ago, and Palmer brought them home, looked in his closet and said, “Mommy, I have too many shoes.” So together, we chose shoes from his closet that he could give to children who don’t have any.  Oh, how I always want him to remind me that we have more than enough.

In our culture, I think we often have to create need for God because we have so much. Too much. I continually find myself asking: what am I doing that would be impossible to do without reliance upon God? I always want there to be an immediate answer. In America, during the season of Lent, we identify with our Lord’s suffering by giving up things like fast food, forks, and Facebook. Our children come from a culture where dependence on God doesn’t have to be so manufactured.

4. Their love for work. They love to spread mulch. Cleaning the bathroom? Better than watching cartoons. They bicker over who gets to vacuum. There is crying if one child gets to do a chore, but the other does not have a comparable one to do. Sometimes I run out of chores for them to do. I know that child labor is a real problem in the Congo, but that very strong work ethic is amazing. I’m very torn about this. They know the satisfaction of working until their muscles are sore and they collapse into sleep out of exhaustion rather than boredom. They are much better behaved when they are busily productive in the life of our family.

And no, you may not borrow them to clean your house.

At first, I wanted to undo much of what our kids had experienced: too much deprivation, too much work, not enough fun. But I’ve come to realize that they are in some ways very blessed to have had the experiences that they have had. They appreciate good food, because they know what it is like to be hungry. They like to work, because they have been too malnourished to have the energy. They know what it’s like to praise God out of poverty rather than excess. They value trust because they know how much it hurts when promises are broken.

I worry that giving them the excesses of American culture will promote spiritual poverty.

My children are living Beatitudes. They are beauty from ashes. They are resilient in ways that they shouldn’t have to be. They have brought just as much to our family as we have brought to theirs. And we are thankful for the culture they carry with them and how they teach us more about Him every day. Thank you, Lord, for bringing Third World Kids into our First World Family.

Palmer did this matching game all by himself!

Palmer did this matching game all by himself!

Addie practiced writing her numbers. She's getting good!

Addie practiced writing her numbers. She’s getting good!

Where in the World Have I Been?

If you read this blog for the crazy kid stories or adoption info, this is not your post. If you know me and have been wondering where in the world I have been, well, this post is for you.

I got sick less than 2 weeks after coming home from Africa. Fevers of 101+ for a couple of weeks. Then the cough started. Then the cough developed into pneumonia. Then I never really recovered from the pneumonia. Then I got strep. Then I couldn’t breathe. I almost got well over Christmas break, but when the new semester started, I started seeing sick patients in the clinic. My kids were coming home from school with the 12 colds/year that most elementary kids have. The fevers came back with a vengeance, which I’ve had for over 2 weeks now. Then I got horrible flu-like symptoms. Then I got strep. Then I got a respiratory fungal infection.  Now I REALLY can’t breathe.

I have not had a single week in which I’ve been well for 6 months. I am on antibiotics, antifungals, steroids, nebulizers, nutritional supplements, and on and on and on. This is particularly vexing because steroids make fungal infections worse, but I cannot breathe without the steroids, which make the fungal infection worse. I cannot breathe well enough to have a conversation. My muscles in my chest and back HURT from trying to breathe. I feel like my face is going to explode. I can feel my pulse in my teeth.

The clinic that has seen this all go down is actually my asthma clinic. They began to wonder in December why I could not get well. Mostly because I was asking them why I couldn’t get well. Not only are they an asthma clinic, they are an immunology clinic, so this was very reasonable for me to ask. I think if you see me sick every 6 months, it’s easy to not hear the “I’ve been sick the entire six months.” My white count is always elevated but never very impressive. I feel worse than my bloodwork looks. Always.

So in December, we started testing out my immune system, and found that though I’m sick a lot, and have had pneumonia a lot, I’m not immune to all but one strain of pneumonia. So they vaccinated me against pneumonia. But meanwhile, my allergy antibodies (IgE) were very high, even in the middle of winter with nothing blooming (yet).

Currently, I am on most classes of medications known to mankind, but I still can’t get well. In the middle of the night last night, I was sleeping on the couch (sitting up) and our dog, Holly, ran in and woke up Ken and brought him to me. I was having trouble breathing. Now unfortunately, she thinks the cure for not breathing is laying on my chest, but she was right about me not breathing. Nor could I quite wake up to realize I was not breathing well. Ken got me a nebulizer and got my lungs going again, but I realized when I am relying on my dog to wake me when I’m not breathing, I may need some additional medical attention. Holly continued pawing at my chest and whining until I called Vanderbilt. And my NPs cell phone.

My NP agreed to see me this afternoon. (Praise the Lord she had given me her cell phone number.) Sure enough, I’m sick and having trouble breathing. After emergency treatment, I am now breathing well enough to still need emergency treatment. The treatment helps, but when my breathing is this bad, my best is still considered an emergency.

She went over my lab results with me, which in hindsight make a lot of sense. I have an IgG (infection fighting antibody) deficiency. I did not mount an immune response to the vaccine I got in December. This is why I cannot get well when I get sick. She noticed a pattern that when I get sick, I don’t just get a little sick. I get really sick, but my white blood cell count doesn’t respond, so it makes it look sorta like I’m not really sick. I just hover at nonwellness for a long time.

The other issue is that my IgE antibodies are elevated, which means my asthma is crazy out of control and my body treats every insult to my lungs like my lungs are trying to kill me. They are actually being fairly successful at that right now.

So we’ve decided to try immunotherapy: suppressing my IgE and giving me IgG. Because my lungs are going to kill me more than the infection, we’re going to do the IgE supression therapy first. I signed over my life today, which is apparently necessary to get this treatment. I just have to wait for insurance to approve it.

Tick. Tock. Tick. Tock. Tick. Tock.

It’s $2000/month, so I really can’t afford to just start it without them approving it. Which usually means a battle waged between a nonmedical provider behind a desk in Watchkatoochie, Wyoming versus the medical staff at Vanderbilt. I’ll still have the $5000 deductible to contend with but being disabled is a whole lot more expensive. Once the deductible is met, then I’ll be able to afford the IgG therapy, if insurance will approve that too. Let’s hope the Watchkatoochians are feeling favorably toward me this time of year.

In the mean time, I’ve switched antibiotics, antifungals, nebulizers, and increased my steroids today. I’m too sick to be in the hospital with a deficient immune system.

So that’s where I am: tucked in bed, with my nebulizer on one side, and my asthma-sniffing dog on the other. I’m thankful for a Nurse Pracitioner who wondered enough why I’m not well to actually do something about it, instead of just scratch her head and wish me well. I’m also thankful that there’s at least a proposed answer and hope that one day I may join the walking and working well again.

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